Spanish Association of DYRKIA Syndrome

The Spanish Association of DYRKIA Syndrome was established in January 2022 and has as its goals: The investigation and dissemination of DYRKIA syndrome, through scientific/medical personnel in hospital centers and national laboratories. As well as the search for new cases and the acceptance of affected families at the national level, for the exchange of knowledge and experiences that can help the daily lives of families.

Fundraising will be carried out, with sporting and cultural events to obtain economic resources that will be used exclusively for scientific research on the syndrome.

Seminars, assemblies, and webinars will be prepared with the participation of medical and scientific personnel. We will give visibility to the syndrome through social networks and other means that we have at our disposal.

Website: www.aesdyrk1a.org

Governance - Board Members

• María Ángeles Alcalá Del Águila - President

• María Jesús Pérez Llerena - Vice President

• David Conesa Garcia - Secretary

• María Teresa Pérez Mariné - Treasurer

• María Del Mar Pagán Solana - Member

• Palma Milagrosa Rivera Castro - Member