DYRK1A Syndrome International Association (DSIA)
The DYRK1A Syndrome International Association includes organizations & groups throughout the world who are working together to improve the quality of life for those affected by DYRK1A Syndrome. These groups include DYRK1A Syndrome US, the DYRK1A Community UK, the Spanish Syndrome Association DYRK1A, and smaller groups in Italy, Australia, Cyprus, Denmark, France, Poland, and Canada. An International Advisory Committee is planned to create more opportunities for our international community to work together on common goals that align with the strategic plan. We are working with international family representatives on the goal of our strategic plan to formalize relationships with international partners.
Mission
DYRK1A Syndrome International Association (DSIA) will exist to support and maintain a unified community of families and professionals focused on improving the lives of individuals affected by DYRK1A Syndrome.
Objectives
To create a structure of unity that fosters working together for the greater good of the whole DYRK1A syndrome community.
To enhance research by encouraging participation in current research as well as furthering the scope of research possibilities.
To positively impact families by providing support, information, and opportunities to connect.
Member Organizations
United States
DYRK1A Syndrome US
United Kingdom
The DYRK1A Community UK
Spain
Spanish Association of DYRK1A Syndrome
Mari Angeles Alcalá & Board Members
Representatives
Italy
Miriam Grigoletto
Elena Caterina Di Noto