DYRK1A UK Community
Charity Registration Number - 1179083
The DYRK1A UK Community is a registered charity in the UK with the main purpose of raising funds to support individuals with DYRK1A syndrome and their families. The funds are primarily used to hold annual meet-ups that allow families to learn more about the condition from professional speakers. The meet-ups also allow families the opportunity to socialize, enjoy family fun activities, and share valuable experiences and advice.
In addition to the charity trustee meetings, we have a Meet-up committee that handles all the details for the Meet-up. The organisations accomplishments are made by all of the volunteers.
Governance - Trustees
Janet Banks (Chair)
Gemma Brady(Treasurer)
Tably Wright
Lynn Hearn
Aaron Johnson
Contact - dyrk1acommunityuk@yahoo.com
Meetup Committee Members
Bhavana Mullapudi
Gemma Brady
Janet Banks
Frances Bush
Kelly Mcleod-Andrews
Keren Franks
Magdalena Pachucy Jalocha
Sarah Stevenson