We are currently using a Facebook Group to connect with other families experiencing the affects of genetic changes that alter the DYRK1A gene. We are a small but growing community that hopes to provide support, information and resources. We hope to spreading awareness of the affects that occur when one of the DYRK1A genes is unable to function properly. We would like to reach more families who may feel alone in their journey to help inspire hope and empowerment through support and information.
We currently have a range of families with individuals affected by a change in the gene all across the world and ages range from 3 to 21. We also have a few researchers that have joined our community.
Join Us on our Facebook Group; DYRK1A gene changes