We have a community, Come join us!

We are currently using a Facebook Group to connect with other families experiencing the affects of genetic changes that alter the DYRK1A gene. We are a small but growing community that hopes to provide support, information and resources. We hope to spreading awareness of the affects that occur when one of the DYRK1A genes is unable to function properly. We would like to reach more families who family-76782_1280may feel alone in their journey to help inspire hope and empowerment through support and information.

We currently have a range of families with individuals affected by a change in the gene all across the world and ages range from 3 to 21. We also have a few researchers that have joined our community.

Join Us on our Facebook Group; DYRK1A gene changes

One thought on “We have a community, Come join us!

  1. Hi our 13 yr old daughter has benn recently diagnosed with dyrk1a….. she has been on the ketogenic diet for 7 yrs now…. and been seizure free for almost 4 yrs now! She goes to school and has a full time assistant (several)….We live in Chilliwack bc and have 6 children we would love to hear from anyone….. if we or you could help,each other out on this “unknown journey”……

    Diny and John and family

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