100 Families

Last week we reached a milestone, 100 families in our community. Then this week there was a surge of families joining us, increasing our family connections to 105 across the world. We have increase our family reach by 153% in one year, we look forward to reaching our next milestone.

Not Horses, Not Zebras, A Unicorn?

When I think of my daughters 18 year diagnostic odyssey and the well-known saying that is shared in the rare disease community about what physicians are taught; “When you hear hoof beats, think horses, not zebras” thinking horses or zebras didn’t work for us when we heard hoof beats. The Continue reading Not Horses, Not Zebras, A Unicorn?